Category Archives: Simply Living

7 Quick Takes – taking a moment to write

It’s been quite a while since I’ve written here.  The “7 Quick Takes” idea from conversiondiary.com inspired me to finally take a few minutes to write, so here goes…

— 1 —

Cute baby alert!     ~G is officially a thumb sucker…

 

— 2 —

I’m reading St. Augustine’s Confessions and though it was written in 397 AD by a man, I am finding we have a lot in common.  I’m kind of “confessing” right there beside him.  Something I LOVE about books, humanity, and God:  being able to relate to the thoughts of someone who lived 1616 years before me, being reminded by those thoughts of the unchanging steadiness of God, and amazement over the many lives spent preserving and then translating those thoughts for me today.

— 3 —

I need to stop complaining to people about how busy it has been this spring.  It’s not that people don’t care, but the general vibe is: “Well, you have 6 kids…”.  I need to remind myself that we all have our trials (6 kids or not) and remember that complaining about stuff never really seems to help me.

— 4 —

I’ve been eating gluten free for a year now in hopes of keeping this crazy rash I have had at bay.  After a big break out last week and my decision to finally make an appointment to see a dermatologist (next week) I decided to try eating gluten again this week (so far so good).  Tonight will be my first Friday night pizza night in a year where I actually get to eat the pizza!

— 5 —

I’ve had a few awkward Down syndrome moments with ~G out and about.  Still not sure when to and when not to mention it.  Had a conversation with a woman up the road who stopped by (after meeting a few times briefly).  Ended up finding out after telling her about ~G that her 12 year old sister has Ds.  Kind of awkward silence when I expected her to say more.  Really though did she need to?  When do you say too much/make too big a deal out of it?  Yeah not sure.

— 6 —

#6 was going to be about how 3 of our boys have finally learned to ride their bikes in our yard/on our trails but just moments before posting this I heard my husband downstairs chastising one of our 6 boys for, get this, shooting pee from a squirt gun!

Wow.

Filed under: “Things you never thought you had to tell your son not to do.”

It is never a dull moment around here.

— 7 —

Enjoying the new stone wall Kevin built (with a little help from the boys) for my flower garden.  It is totally sit-able and perfect to view the $30 in flowers I planted so I could enjoy flowers this year all summer instead of just in August .

 

For more Quick Takes, visit Conversion Diary!

It’s a Baby!

“It’s a Baby!”  I cried out in relief and joy when our first son made his appearance into the world almost 11 years ago.  We had decided not to find out his sex until birth, so I didn’t immediately know that tidbit, but I did know he was a baby and I was in absolute awe that one had just come out of me.

Maybe I’m dense, but on this my sixth birth I still couldn’t wrap my brain around how a new life could come from inside me and out into world.  ~G’s birth was fairly quick like it was for four of his older brothers (about 3 hours of active labor).  This time I opted for an epidural as a treat for the last last hour and a half of labor as well as the final push.  I was really tired all month and wanted to be a little less exhausted when I greeted this new little guy.  Without too much fuss he arrived, Kevin cut his umbilical cord, and there was ~G warm and new in my arms.

When we first found out about ~G’s Down syndrome I did intensive research for two weeks to find out what it all meant.  What I found was that Ds could mean many things, from heart defects and other health issues to a wide range of intellectual abilities.  All that information really didn’t tell me much till we met OUR little guy and  I knew I would love him (like all of our sons) for whomever he would be, so I stacked that info. away and went on with life.

I did however have a thirst to tell most everyone who commented on my pregnancy or asked if I knew the sex of the new baby that he was a boy and that he had Down syndrome.  I felt that by being upfront about it, the power it had to form his identity was taken away.

Kevin on the other hand hardly told anyone in the months before ~G was born.  He explained to me this past week that he didn’t want preconceived ideas of who our son was to skew his heart before he was able to meet him.

Really we were both preparing open hearts for our boy, though we went about it in very different ways.

On this the two week anniversary of ~G’s birth I thought I would write about him so far, now that he is here with us.

Here is our baby:

~G has sleepy faces, “I’m having a bad dream faces”, smiles, budda/drunk with milk faces, and yawns that look almost exactly like those of his brothers when they were infants (who themselves looked very similar to one another).  He has dark hair too like his brothers all did when they were born.

He is also distinctly himself:  he is a fantastic eater (by far the best of all the boys who were good eaters as infants), he has a big button “outie” which we discovered yesterday when his umbilical cord fell off, he sleeps lots, and when he cries he lets out one big siren like cry then is silent for 30-40 seconds and then lets out another piercing cry instead of steady wails, when he is hungry or needs changing.  ~G has a dimple on his left cheek, you see it especially when he eats.

When ~G is asleep he looks more or less just like his five older brothers did as infants.  When he is awake I see his almond shaped eyes with the nuchal fold I read about months ago.  His blue eyes appear quite dark (darker than his brothers were as infants and they all now have a shade of blue except 17 mo old ~O who has a sort of hazel eye color) and we wonder what color his will end up being.  He has wonderful quiet alert times where he looks around interested in the world.

We all love him.

Everyone enjoys holding him, except 6 year old ~C who is happy to sit beside me as I hold ~G and he looks on.  ~O at 17 months loves to take off ~G’s hat so he can snuggle his head and get warm soft baby cheek contact with his own, slightly older, warm baby cheek.

Two weeks into knowing him, ~G is not scary or other, and I don’t care if those I meet see his Down syndrome in him or not and I no longer feel the need to tell them. He just is and it is beautiful and exciting.

I am thankful for his apparent health (his heart is looking good, etc.), though I realize nothing is certain in this world and I am enjoying each new and special day with our family.

My favorite moments with him so far are late at night when our busy house is drowsy and quiet and ~G, tummy full, stares sleepily into my eyes and we see nothing but -each other.

Love, Love, Love,

~Lisa

 

 

 

Putting Down syndrome in its proper place & glimpsing our new normal…

Our 6th son at 19 weeks. He is now 33 weeks and due to enter the world late Feb. 2013.

I watched It’s a Wonderful Life twice this Christmas season, once on Christmas Eve and then on the Epiphany as we packed away our ornaments and took down our tree.  I had never watched it fully through yet I had this inexplicable yearning for it this year.  Watching George Bailey struggle with the trajectory of his life through the many circumstances thrust upon him, his glimpse into life lived without him ever being born, and the final glorious realization that all his imperfect contributions really did culminate in a wonderful life, was well cathartic.

I wrote to a friend just the other day saying pretty much the following:  “It’s funny how comfortable I am becoming telling random folks about the new baby and his Down syndrome.  When someone asks if I know what sex the baby is I share that he’s a boy and then that we also found out he has Down syndrome.  There is often that moment of sympathy, but honestly it passes me by as I feel in my heart ready to meet him as God intended.

I am prayerful that I will feel this sense of confidence, sureness, and lack of sadness, when he comes.   It’s just fascinating how already this diagnosis is becoming just a “what is”, “not a big deal”, “just a part of life”.  I pray that feeling continues.

I haven’t had any mystical visions into my past, present, or future, like George Bailey, but I do feel a ready heart for this new, beautiful, valuable life.  I can’t wait to welcome him home in celebration and begin to live, in full, our new normal.

~Lisa

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I know I was fairly fuzzy about the facts myself before we knew our family would include someone with an extra chromosome so if you are interested here is a pdf booklet for family and friends from www.downsyndromepregnancy.org that gives some great information about Down syndrome. (you can also scroll down this post for some bullet points on Down syndrome)

 

MEDICAL STATISTICS:

  • 80% of all Down syndrome babies are born to women under 35 
  • One in every 691 babies in the United States is born with Down syndrome.
  • People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia, and thyroid conditions.
  • Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today.
  • All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses. 

These statistics were taken from the National Down Syndrome Society website.

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Terminology

Here is a list of terms that are no longer used when referring to a person with Ds:

  • Down syndrome child
  • Down’s/Downs baby  
  • Downsy
  • He/she suffers from Down syndrome or is afflicted by Down syndrome (It is a diagnosis not a disease).
  • Mental retardation (although medically acceptable, it’s social unacceptable)
  • And of course… retard

List of terms that are used when referring to a person with Ds:

  • A person with Down syndrome
  • cognitive disability  
  • cognitive impairment 
  • intellectual impairment  
  • intellectual disability
  • developmental delay 

These terms can be found on the National Down Syndrome Society and the National Down Syndrome Congress website.                                              

New Year’s and The Picture imPerfect

It is nearly the beginning of a new year.  I sent out my Christmas/New Years cards though I avoided Facebook seasons greetings because of the feeling that for some, life may not seem so great right now.

The smiling faces and happy happy appearance of the lives of others can be kind of silencing/deafening when your heart is feeling low and hopeless.

If that is you, I just want to say I hear you.

Below is the photo I took for our Christmas card photo.  It was early in December and I knew the next day it was going to warm up, rain, and wash all that beautiful snow away.  So I was on a mission.

Kevin helped me get the boys together in vests and warm yet photogenic clothes.  I set up the camera in front of the playhouse. Kevin very “scrappily” built the boys a playhouse this past summer with a base structure of palettes foraged from the dump.  I then went back to the house to gather everyone.

Our 4 year old put up resistance first.  He screamed to be given a ride up to the playhouse in his sled.  Honestly it was not really a crazy request, but I balked at it anyway and then wisely gave in when I saw I was losing the battle.  Once we were all up at the playhouse the kids weren’t quite cooperating with my vision.

Instead of keeping my cool, I melted down.

It was kind’a ugly.

I cried in a VERY hormonal pregnant way and went on  and on about how I only asked them to do this 1x a year for our Christmas photo… yada yada yada.  I went back to the house crying all the way.  I gathered myself, took off the puffy winter coat I was feeling very frumpy in, wiped my tears, and headed back to the lions den to try again.

To the boys credit and Kevin’s, they all had pulled it together and we got this photo:

A photo that yes, I think represents our family at its best, and I love it.

I look at it and appreciate its sparkle even more knowing what we looked like and how we felt just minutes before.  It is a vivid reminder of our imperfect life.

Yet at the same time when sending it out on cards I realize people only see the seconds after/sanitized version.

Since the cards hit the mail I have confessed this story to as many people as I could.  I have felt this great urge for people to see inside the photo.  It is so easy for us all to look at each other and only see the “picture perfect” and not the other side.  But isn’t it the other side that really gives us communion with one another?

I love my family, I love my life, it’s true, but we are not perfect and never will be.

So here’s to the real in 2013.  Whether you are saying bring it on, not so fast, or come what may, I wish you a picture imperfect, but very real year full of unexpected blessings.

Love,

~Lisa

Be the Dandelion.

~C picked this flower for me a week or two ago, before the cold set in and snow.  I love how kids adore dandelions and totally see them as flowers and not weeds.  I know I did when I was little, despite my father’s view that dandelions were pestilence in need of eradication from our lawn.

As an adult, I adore when they are freshly picked and lovingly given to me from one of my kids.  But I have to admit when placing them in a bud vase or small glass I cynically think, they are going to close up in 15 minutes and look dead and ugly.

Here it is though two weeks later, puffed up and beautiful on the kitchen sill overlooking our bright yellow playhouse.  It is magnificent, glorious, –transformed.  Anything but dead and ugly.

I tell you the truth, unless a kernel of wheat falls to the ground and dies, it remains only a single seed. But if it dies, it produces many seeds.  -John 12:24

I like to think of myself as that pretty yellow dandelion displayed with love in a little humble vase.  But I know that it’s only half the story, that the ugly Lisa underbelly has got to die, so I can be like that white dandelion transformed and ripe for sharing all the best parts of itself on the winds of grace…

Today was a lot.  Today I felt like a pregnant mom with 5 boys.

First there were two 9am dentist appointments.  Not just cleanings, but big stuff, a filling for one son and a tooth extraction for the other son.  There would be novicaine involved, and no nitrous oxide to ease things like our old dentist used.

I got up early to feel more prepared for this extra busy morning.  There was unexpected snow, an angry screaming preschooler out of sorts wanting daddy even though daddy already left for work, ~K mad and stompy about the two brothers that weren’t going to be on the bus with him because of their dentist appointments, scrambling to appease everyone, feed everyone, get the car warmed, the baby fed, diaper changed, dressed.  Then slippery roads, can’t make it in to drop the preschooler off at school safely, cars slip sliding all over the road.  A quick change in plans, ~R will just have to come with us too.

We make it to the dentist only 10 minutes late.  The two older boys go with their respective dental assistants as I play in the waiting room with my 4 yr old and 1 yr old, keeping them occupied and somewhat happy.  I chase ~O a dozen times as he toddles mischievously down the hall toward the exam rooms.

I pray, pray the two boys/patients will be ok and not scared or hurt during their procedures.  But I have to trust.  There is just only so much of me to go around.

Both boys come out about a half hour later, each with numb mouths, but they look ok and I am proud of them for doing it without me.  We get in the car and drive 20 minutes to drop one at one school and then the other at the other (where of course  ~R my 4 yr old wants to go to his preschool class, which isn’t going to happen because there is only an hour left and I am tired).  So more patience as I coax him out while holding ~O in my arms.  Promises of making chocolate chip cookies finally take hold of ~R’s imagination and and we make it back home.  Once there ~O takes a nap, I read to ~R and fall asleep in 5 minute snippets as he allows me to.

It has been a day where every child has taken from me in anger or in need and I have felt steadily pressed upon for something all day.

I am tired, I am weary,  I feel like a wilting dandelion sitting in a cup.

It is so hard to remember that on days like today, where I manage to give with grace, that I am closer to the white dandelion than the wilted, that in giving I am transformed.

Jesus does it so perfectly.  Man he is good.  It’s never about him, he gives in abundance.

I can’t say the same for me.

But I can get up each new day, sprout my bright yellow petals and try…

~L

 

 

The View on the Way Home

This is the quintessential view of my childhood.  The roller coaster coming into my home town.  I remember it especially at night, I’d be asleep in the back seat coming home from somewhere and then wake just in time to see it all lit up, it was then I knew we were almost home…

Just beyond the roller coaster lays the Atlantic Ocean and about seven miles of gorgeous sandy beach and then at the tip of the peninsula, where we lived, rocky beach.

Photo posted by The South Shore Page on Face Book

I only rode the roller coaster twice.  Both times on the same day in 8th grade.  My friend who was way more adventurous than myself “encouraged” me by offering to let me sit next to her cousin (who I had a crush on).  I remember wrapping my arms like a Twizzler candy around the lap bar that was meant to hold me in.  There was a big gap between my thighs and that bar and as we went down the biggest hill my behind flew a foot or two in the air as my stomach dropped.  I thought “What are these people crazy?  If I wasn’t holding on for my life I’d fly right out of here!!!!”  I got a fat lip that day from hitting my mouth on that ill fitting bar as I held it tight.

The park closed not long afterward and everything but the old fashioned merry go round left our little spit of heaven.

Yesterday the boys, Kevin, and I attended a “raking party” at the local retirement community.  My oldest 3 are in Scouts and every fall the Cub Scouts rake the tons of leaves that fall on the property for the residents there.  The boys had a great time.  With ~O in the stroller I walked around and chatted with other parents and snapped a few photos.

 

On the way home the view was beautiful.  Because I’m usually driving and/or do not have my camera with me, I can never capture it.  This time it was a crisp clear day, the mountains were capped in snow, and Kevin was at the wheel so I decided to try.

 

 

This is the view when we are about 5 miles from our house.  This spot is at a higher elevation and as we get closer home and go down into the valley the mountain disappears.

 

 

It wasn’t till I uploaded these photos that I made the roller coaster connection:  This mountain is my kids roller coaster,  their sign that we are almost home.

We all have those bits of life, be they landmarks, people, seasons, that says something so integral and deep in us that all we can do is exhale and know home is not far off, even if just in memory.

~Lisa

A special end to a special day…

My two oldest boys ~V and ~K spent 3 hours Saturday afternoon at a local mall selling their origami ornaments to help support the Vermont Food Bank.

I parked the car in the parking garage and while trying to find our way to the elevator we met up with a young family.  They had a little girl maybe 2 years old, held by her dad and the mom looked at least 8 months pregnant.  I wasn’t sure which floor we wanted as we  rarely go to the mall, so I asked them if they knew.  They said they were from Massachusetts and were just visiting.  I of course told them where I grew up in Massachusetts.  I  mentioned how the boys were at the mall to sell their origami ornaments.  I wished them a great visit in Burlington and off we went.

Wow, the boys were just phenomenal.  I felt so proud of them today.  They sat at the entrance to the Vermont Artisans and Craft Gallery and to nearly every passer by ~V would say “We are making origami ornaments to help the Vermont Food Bank” and ~K would follow up with “They’re $5 and $5 equals 30 meals”.  They didn’t feel dejected when they were ignored or refused, they just kept going.  When someone would say they didn’t have any cash on them ~V would say “If you have a credit card they can take it inside”.  More than one person laughed and said what a good salesman he was.

I never had that sort of bravery, certainly not at their age and hardly at mine.  They made $134 in those 3 hours, on a day when the mall wasn’t that busy (it was 70 degrees out today).  I would estimate that they would have made 20-30 dollars if not for their amazing efforts.  For three hours they folded ornaments and continually repeated their rehearsed lines.

I felt proud.  There are many things Kevin and I cannot afford to do with or for our kids and sometimes I feel insecure about that, but this experience will live with them forever.  The icing for ~K was the man who stopped and told them that he was one of the people they were raising money for, Kris just glowed after that and said “This is the best day ever!”.  The impact of what they were doing became so real for him right then.

By the end of the 3 hours ~V was absolutely exhausted from folding ornaments and talking almost non stop.  As we headed to the parking garage we made sure to ride the escalator, yes that is a special treat for them, and then into the parking garage elevator.  As the elevator stopped at the floor before ours in walked that same family of three that we had met on the elevator 3 hours before.  I couldn’t believe it.

I said hi and something about how weird it was to see them again and also mentioned that the boys did a great job selling their ornaments.  I felt a tug on my heart so I reached into the wicker basket we had full of ornaments and chose one of the frog origami ornaments (the ones Val insisted we labeled with Fully Rely On God) and pulled it out to offer them, not expecting payment, but feeling like there was a reason we ran into them again.  They wanted to pay and I mentioned that there were instructions on how to pay online to the Food Bank directly on the label if they wanted.

We got off the elevator and walked to our car.  A few minutes later I heard a voice and turned around, it was the woman 8 months pregnant, running after us to give us money, she said she had found some and handed me 2 $5 bills.  She said she knew it was more than we charged, but that it was going to a good place.  I was so surprised as were the boys.

We got home and it was a whirlwind trying to get costumes together for a Halloween party we were attending that evening.  It was a busy and fun night.  We got back to our house at around 10pm and while walking up the front path, Kevin said “Oh wow look at this!”  and on our front all glass door there was this:

a little orange FROG.

We were all kind of amazed at this little guy.  We have seen frogs around and about, but never up on our door like this.  To me it was the perfect symbol, reminder, and end to a very special day, where I got to witness two of my sons out in the world using their gifts with uncensored confidence and kindness.

~L

Small moments…

The older boys have today and tomorrow off.  I love moments like this when they are engaged quietly together in some activity.  I couldn’t resist taking this photo earlier today when they were reading together through the Dungeons and Dragons book ~K got for his birthday.

I feel just so tremendously blessed to have them in my life and be mom to them.

The day is sure to be full of activity, running around, someone mad about something, someone else bored and needing redirecting, etc. but I value these small moments.  They just make life feel so full and beautiful.

~L

Everything is different – everything is the same

This was the prayer Kevin chose from our “blessing box” tonight for our prayer before dinner:

“Every thing is different
even those things that look the same
that’s how angels are.
Amen.”

(written by our oldest ~V when he was in 1st grade – I fixed the spelling)

What perfect words for today, the day that we were told that this newest little member of our family due in February does indeed have an extra chromosome and therefore Down syndrome.    I know it is scary, I know the gut reaction is sympathy, but I’ve been saying all day to family and friends, past my tears, that I just know he is this amazing gift from God, even if it is a gift I am a little scared to open.

I’m sure I’ll have more to say later, but for now…

 Love Love Love

~Lisa

Confession: yeah I’m rusty at this…

Kevin, the boys and I went to church last night.  It was a special service to kick off the Catholic Church’s “Year of Faith“.  I have felt tired and a bit out of sorts the last couple of days so Kevin offered to take the older kids while I put ~O the littlest to bed and got some rest myself.

While Kevin got the kids a quick meal he explained to them that he was taking them to church.   There was a fair amount of screaming from at least one child and exclamations like; “I don’t want to go!” and “Why do we have to go?!”.  Nothing too different than when we head to church Sunday mornings.  I almost felt bad for them. I don’t remember as a kid going to many “extra” services and I’m sure I would have complained at the time too, but hearing Kevin explain to them about the “Year of Faith” and how by attending this service we would be coming together with our community and that the boys presence was important to strengthen others in their faith, well he had me convicted and I knew that I needed to go and personally “show up” more than sleep.

It was a Penetential Service.  What I had recalled Kevin describing it as was a service with a group absolution portion (forgiveness of sins) and then private confessions, if you choose.

Part of my reticence was that I hadn’t been to confession in over 20 years.  I confess to God many times a day in the moment, but in front of an actual human being acting as God’s servant, no.  For about a year now I’ve thought of going, but the reality kind of made me a bit sick to my stomach.

Throughout the service the kids were a dream.  I felt so strengthened by all five of them in the pew with us.  I think it was the best they have ever behaved at church.  Taking them in this quieter than usual setting at bed time was an act of faith itself.  I was flanked by the two middle boys one at each side, under my arms like I was a mother bird.  We sang together and listened to Father ~L speak about Saint Dismas , the thief to Jesus’s right as he was hung on the cross who stood up for Jesus and in doing so acknowledged his own sins and asked Jesus to remember him in Heaven.  Father ~L spoke about how it was the very first confession.

Then the service was over…  or really just beginning.  My heart beat a little quicker.  It was announced where six or seven priests would be located in different private areas of the church.  There was no communal reconciliation as Kevin had alluded to.

One of the older boys turned to me after they had pointed out where our parish priest would be located and said with excitement and joy “Can we go to Father ~T?!”   How could I deny him confession??  My heart soared, really, that going to confession sounded so good to him.  I don’t ever remember feeling that way as a child.

I thought, “I guess I’m doing this.”.  I started to make a plan.  Do I bless myself first?  I remembered about 3 lines of the Act of Contrition, the prayer asking for forgiveness of sins that I learned as a child before my First Reconciliation (confession).  Luckily Father ~L mentioned that anyone that didn’t know what to do and hadn’t been to confession in a long time they could just go in and say “Our Lady Sent me.” (that would be Mary).  Ok, but even that felt a bit awkward to me.  At least it gave me something to go with.

We went to the front of the church, behind the altar, and stood in line.  There was a sort of vestibule where we waited and then two rooms where different priests were hearing confessions.  Kevin and our two oldest took their turns, then it was my turn.  The room we were to say confession in was down a short hall and to the left.  I went in and sat in front of our parish priest.

I stumbled in my words, I think I almost giggled, I know I smiled inappropriately.  I felt lost but eventually managed to confess some things that had been on my heart.  The process did not feel natural or comfortable, it felt funny telling someone I knew such heartfelt personal things.  I tried to look at him as the human embodiment at that very moment of God.  I  was completely without pretense, vulnerable, like Jesus had allowed himself to be on the cross.

It wasn’t till the end when the absolution came, my head bowed, and Father ~T prayed over me that my humbled spirit felt the warmth of forgiveness spread throughout my body.  I was surprised to truly feel something, but I can’t deny it.  I felt lighter.

I met the rest of the family at the back of the church where they were quietly waiting for me and we headed home.

It wasn’t till I woke at 1:30 in the morning and was replaying the night in my mind that I realized I hadn’t shut the door to the room I made my confession in.  I started wondering “Did everyone out there (about 6-8 people) hear my confession?!”.  I had a little anxiety and eventually resolved it by recognizing my humility and that perhaps if they did hear it would do them some good to witness another persons’ humanity.

At breakfast this morning I asked the boys if they could give me the lowdown on Reconciliation as I didn’t really remember.  They both told me that they didn’t remember the prayer when they went in to confession and that neither of them had thought to shut the door either.  They didn’t seem at all bothered by this.

They met God like a child and last night, so did I.

~Lisa

 

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